More than 500 people with albinism from all the districts in the North West braved the hot weather on Tuesday and flocked to Dinokana village in Ramotshere Moiloa local municipality to commemorate National Albinism Day and voice their day-to-day life challenges with Social Development Deputy Minister Hendrietta Bogopane-Zulu.
“People with albinism continue to experience high levels of prejudice, discrimination and sexual assault by some community members where they live on mythical beliefs that their perpetrators would be cured of the HIV and Aids,” Mapula Mathe, said during her presentation of challenges faced by people with albinism in the province.
Mathe said it is about time government undertake awareness campaigns to communities and educate them about albinism as a disability like other permanent disabilities.
During the dialogue with Bogopane-Zulu Mathe said people with albinism unanimously recommended that government provide social grants to all people with albinism regardless of their age. In their recommendations they also say government would selectively develop a database for people with albinism.
In her response to the plight of people with albinism Deputy Minister Bogopane-Zulu said they have started with the process to change the derogatory language used against people with albinism.
“We have started engaging our people at large on dialogues to change the perception. If we are to restore the inherent identity of people with albinism it all have to start with the language that we use. There is no consensus on the correct name of people with albinism,” Bogopane-Zulu said.
She said people with albinism would be registered to access sun screens that government would make available in all the clinics.
Meanwhile North West MEC for Social Development Fenny Gaolaolwe launched ‘Ikitsise’ (loosely translated ‘introduce yourself) registration form to collate information on people with albinism.
“We have started with dialogues at the district level to allow people with albinism to voice out their concerns in general about access to government services such as social grants and many other challenges they face. We will register them in a database and ensure that they access the necessary services,” Gaolaolwe said.
Her counterpart Culture, Arts and Traditional Affairs MEC Tebogo Modise encouraged communities to engage in dialogue termed ‘A re bueng’ which seeks to explains albinism as a disability and that community should accept and treat people with albinism with dignity and respect.
-TDN
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